Top 5 Best Sleep Products for Fibromyalgia, CFS/ME & Chronic Pain

In Blog, Gallery by Alyssa Reid43 Comments

When it comes to comfortable bedding, I am known in some parts as ‘The Princess & The Pea’…That’s why I thought I would share with you about my top 5 best sleep products for fibromyalgia, CFS/ME and chronic pain.

As many of you know, getting a good, well-rested sleep where you wake up feeling refreshed and better is the dream for many of us. In fact, there is a direct correlation to poor sleep, increased pain, and mental health issues such as brain fog, anxiety and depression.

Is a Poor Quality of Sleep Affecting Pain, Brain Fog and Depression/Anxiety?

You had better believe it does!  Here is an article by the National Institute of Health – albeit it is about osteoarthritis, the principle still applies.  Getting a good sleep is paramount!

Ps.  One of the main issues that can cause sleep disturbances and insomnia are…opiate medications.  Using my FibroMapp app to track my medications, I was able to determine that it was Tramadol and Tylenol 3 that were the culprits for NINE YEARS of insomnia! Seriously.  Here’s a good article if you’re interested in finding out more about how opiates affect sleep.

Here are my top 5 best sleep products to help you get a good sleep!

1.  A Good Mattress/Mattress Topper

Firstly, let’s start off with the base issue for many –  a comfortable mattress is of course the key component to ensuring you are getting the support and comfort you require.

Did you know that a mattress should be replaced every 7 years according to the Sleep Council?

And that’s for ‘normal’ people who generally only sleep in it…versus people with chronic pain, fibromyalgia and CFS, who may be spending a lot more time in bed!

I highly recommend if you can physically try a mattress first before buying…and if that is impossible, make sure that if you buy a mattress/mattress topper online that there is a full refund policy if you are not happy, including pick-up and handling fees.

Foam or No Foam, That is the Question

I know many people who swear by memory foam mattresses – and people who find their’s way too hot for them.

So, it is imperative if you are making an investment in a mattress to ensure that if it doesn’t suit you can get refunded. (And make sure that you don’t get rid of your previous mattress until you are A-Ok with the new one!!!)

Personally, after experiencing a foam mattress that was ‘gassing off’ ie a new mattress that was releasing horrible toxic fumes…for over a week…I had a LOT of concerns that this was what we were sleeping on.  And breathing.

Therefore, I sent it back and went for an organic mattress made with cotton, wool and alpaca.

I found this still a bit too hard, so we ended up getting an AWESOME feather mattress topper.

IT IS LIKE SLEEPING ON A CLOUD!

Ps. We knew this mattress and topper was making a substantial difference in pain levels, but we didn’t know how much until we went away for a weekend and slept on a crummy mattress. 

It took weeks to be able to walk properly, and 2 trips to the chiropractor! For 2 nights on an un-supportive mattress!  So…think about how YEARS on your mattress may be causing you all sorts of pain and problems sleeping???

2.  The Chronic Pain (Maternity!) Pillow

One of the best investments that I have made this year is buying a maternity pillow.

No, I’m not pregnant, but yes, I sure need comfort and support!

My favourite pillow in the world!

My favourite pillow in the world!

I have turned my pillow around so that there is an area to go under my legs to support and take the pressure off my lower back and hips.

So far, after five  year’s of constant use, this pillow continues to hold it’s loft!  Plus I love how it cradles me and provides support, even lying on my side.

Several of my friends have purchased other body pillows…but the biggest issue is taking the cover off (and putting it back on) to change it. (One friend said it took her AND her mother close to 15 minutes to change hers – and it wiped her out!). Not so for the Sanggol, with a big zipper for easy access!

  • No repositioning during the night, simply turn from side to side
  • Hour glass inner curves snug and support your entire back and belly
  • Aligns hips for neutral joint positioning
  • Ideal for sciatica, gastric reflux, congestion, fibromyalgia, and carpal tunnel syndrome

I cannot recommend the Sanggol pillow enough.  Excellent, long-lasting quality – and available in the US and the UK.

Update:  I have been using this pillow for close to 5 years now. It has never lost it’s loft, and it remains a #1 investment for comfort, sleep …and pain! Highly recommended!

Sleep with it this way, or turned around, for better hip support..

3.  Bamboo Bedding

You read that right.  Bamboo?

Are you thinking scratchy, uncomfortable and, well, yucky?  Think again!

Think luxuriously silky soft. Think all-natural and amazingly comfortable.

On top of it all, you can get organic bamboo bedding that has never been exposed to harsh (and toxic) chemicals.

The 100% organic bamboo sheets that we have are literally like sleeping on the finest, softest Egyptian cotton with 300 thread count….

Trust me on this one. Bamboo bedding absolutely ROCKS.

 

Why I Love My Bamboo Bedding So Much…

  1. Great for night sweats – they are moisture wicking
  2. Super soft
  3. Hypoallergenic, antibacterial and odour resistant – the ideal sleep environment for all the family and perfect for those with eczema or sensitive skin
  4. Made from organically grown bamboo. Certified to OEKO-TEX Standard 100 – free from harmful chemicals
  5. Breathable, absorbent and moisture wicking – more so than cotton – helping to regulate body temperature and aiding coolness in summer and warmth in winter

My mother informed me about bamboo bedding last year.  My mother rarely raves about anything, and she was sure raving about her sheets! And now I know way! #BambooBeddingRocks

4.  Aromatherapy with Essential Oils & a Vaporizer

For many of us with fibromyalgia and CFS/ME we can be sensitive to smell – in both ways, good and bad smells.  We can smell things when nobody else can it seems!

For me, having soothing scents in our bedroom really helps (read ‘helped’) me to sleep (see below).

Setting ‘the mood’ for getting a good sleep is imperative.

That’s why I LOVE my COOSA Ultrasonic Aromatherapy Essential Oil Diffuser, (and so does everybody else, when they see it! A great present it has made for quite a few friends!).

Not only does it scent your room and make pretty colours…

Humidifier: On top of the lovely scents and beautiful colours that the COOSA has (you can select a particular favourite colour, or it just gently goes through the range every few seconds), it is also an ultrasonic humidifier, which is great for the winter when you get dry, stuffy air. It moisturises and refreshes the air we breathe to prevent dry chapped skin, chapped lips and dry sinuses.

Peace of Mind: When water runs low it shuts off, making it energy efficient, and adds peace of mind- especially for use at night.Safe design with automatic shut off if water is out,ultrasonic whisper-quiet relieves depress and won’t interfere with your sleep.

Super Cool: Possibly one of my fave parts of this amazing gadget (on top of being BPA free and GORGEOUS to look at), is the mist that emanates from it.  I like to think that I am in a cool witchy, new age shop! 🙂

IMPORTANT SAFETY WARNING:  Essential oils, even used in diffusers can be toxic to cats!!! The mist from t

Good Sleep at Night Essential Oil - 100% Pure, Best Therapeutic Grade - 10ml - Includes Clary Sage, Copaiba and Lavender

he oil can go on your fur baby, they lick it and their livers can’t process it – making them sick, or worse…this can be fatal. (So now, my diffuser s

imply mists my room, with beautiful colours, minus any essential oils… 🙁  which sucks.  But there was a noticeable improvement in one of our cats that had been lagging recently…!).

Essential Oil for Sleep

Of course, you need to have some lovely essential oils to use in in your diffuser! My favourite is (read WAS, before the kitty cat toxicity scare) a blended oil, such as the Good Sleep blend, instead of just lavender (although that is the #1 sleep oil.)

5.  Organic Buckwheat Pillow

In trying all sorts of pillows over the past few years, I always went back to my tried and true friends…of the feathered variety, a good feather pillow.

Problem was cleaning them was a nightmare. (Feathers EVERYWHERE in the dryer…all over the house!) and my husband started to get blocked up and coughing during the night…which stopped immediately when I replaced the feather pillows with these organic buckwheat pillows.

Contour for Comfort: We love how they contour around our necks and shoulders giving support just where it is needed…and the ability to adjust the amount of filling makes this pillow excellent. You can also remove some of the buckwheat easily, should you find that the pillow is too high for you.

  • So versatile like having several different pillows in one! – Adjust to any position! High, Low, Soft or Firm.
  • The ONLY pillow to fully support the head, neck & shoulders! – 100% Organic, 100% Bio-degradable, 100% Natural
  • Zipped for removal of contents for adjustment and cleaning – Keeps you cool in the summer, and warm in the winter! No Mites, No Toxins – Just Natural Buckwheat and Organic Cotton Drill!
  • Wonderful British Made Eco-product. Grown without Pesticides & Herbicides, simply because the sturdy plant has no attraction to Insects & Mites.
  • Can help reduce neck and shoulder pain

Great Info on Different Sleep Positions for Various Pain Issues



So there you have it!  My top 5 best products to help you sleep and get comfortable for fibromyalgia, CFS/ME and chronic pain!

Comments

  1. Thanks for this I will try some of these. I can’t get cool enough at night. I use a gel pillow already but it heats up to fast so will try the ice packs. I use a wet facecloth on my brow every night.
    Never heard of a wheat pillow but will look into it.
    What is the coolest bed type that you know about please.

    1. Author

      Hi there! I also struggle to get cool (hence the fan going in January in our bedroom 24/7). Placing ice packs on the back of your neck I find can really help to cool down. The KoolPaks I find are the best ones – they keep frozen the longest – and freeze very quickly as well. I am currently awaiting a mattress topper that is designed for chronic pain, arriving on Friday, so I will be keeping everyone posted as to the verdict! Keeping cool and comfortable during the night is so important to be able to get a better night’s sleep. Oh! The other thing that can cool you down is to run your wrists (hands turned up) under cold water for a few minutes. Hope these help a bit! A.x

  2. So sad to learn that they will not deliver buckwheat pillow to the U.S. Any ideas??

    1. Author

      Hi there! That’s probably because they are HEAVY! And would cost more to send over than the pillow itself! However…you are in luck! Here’s a link to ones that are in the States. This one is available next day delivery if a Prime member on Amazon – there are others that are more expensive. (This one is from China – but has excellent reviews and a fraction of the price of other ones!).

    2. Author

      Hi Marilee – I have updated the link on this page for a buckwheat pillow if you are still interested.

    1. Author

      Hi Sarah! I have updated the page with the correct link. Thank you so much for letting me know!

  3. Thank you for all your ideas on to a better sleep. I already use a cool gel pillow and a mattress topper with cooling gel in it as well. I have my heater vent shut off and the ceiling fan on and the window open about 4 to 6 inches to keep me cool. I would love to get the sheets you mentioned and the buckwheat pillow. Plus in the summer I have a tall fan at the foot of my bed.

    1. Author

      Awww! Glad to be of help. I hear you re the fan situation. I have mine going most days and nights in the bedroom (whilst my husband huddles up under the electric blanket on his side). 🙂

  4. I’m definitely looking to try the chillow pillow. I suffer really bad night sweats. Especially the last six hours before my Fentanyl is due to be changed. This might help me sleep better. Thanks, from a fellow spoonies xox

    1. Author

      Hallo! Hope it helps. I hate night sweats (and day sweats!). Ice packs wrapped in a towel and placed at the Base of your skull can help. I use the Koolpak ones. The freeze quickly and stay frozen for a lot longer. I have two so can easily rotate them. X

  5. Thank u for this, I am definitely going to give the maternity pillow a go as not only do I suffer with Fibro, I have DDD (degenerative disc disease) in my lumber spine aswel so I think the pillow will really help me. Can I also ask what the colour changing fragrance pic u posted is called & how it works as I wouldnt mind trying that too please.
    Kind regards
    Your fellow spoonie
    Nikki x

      1. Brill thank u hun. Will look forward to reading your next blog.
        Wish u a great low pain day too. Take care

  6. Hi me again, sorry I have just looked and clicked on the pic of the colour changing mist thingy and it took me to Amazon but what I was wondering is if that company ships to the UK and also if they do, this item is going to have a US plug on the end of it isn’t it so it won’t fit UK plug sockets? X

    1. Author

      Hi there! Thank you so much for your comments! Ok, in regards to the oil diffuser, here is the link for the UK http://amzn.to/2beXqUQ It’s great that you are looking at doing things to help relax you and to get a better sleep! Yay! I am just getting ready to write another blog on this subject and this time will do UK products (as that is where we are based – we just have a large US audience, hence the US Amazon stuff!). Hope you have a great low pain day! A.x

  7. Regarding your bath problem I may have a solution that works for my coccyx. I use a bath cushion from Putnams, it has suckers on the bottom to secure it to the bath. It’s inflatable so you can adjust how much resistance you require. I also have one of their cushions for use out & about to remove coccyx pressure.

    1. Author

      That sounds awesome Natalie! I used to have a cushion…but the material on it ripped and the suction cups never worked…and I ended up going for a flyer in the tub most of the time! Finding products that make a difference and help us have ‘normal’ and every day experiences really helps! Thank you for your comment. A.x

  8. Hello! Thank you so much for the great information! I’m definitely going to look into the maternity pillow, sheets and oil diffuser. I seem to be cold more often, ice packs hurt me. I would rather be warm, so the colder months are not my favorite. With that being said I seem to be spending more time in bed. I was wondering if anyone has come across a desk type thing that could function over your bed? I use my laptop and I like to draw and scrapbook when I’m able. But sitting at an actual desk is not an option. I also have fibromyalgia/CFS, and neuropathy, lupus and MS. Thank you so much and wishing you all a low pain day !! <3

    1. Author

      Hi there! Thank you so much for your comment! (I love comments!!!). I definitely hear you in regards to finding a ‘good desk type thing’ (in fact that is all I use as I am pretty much bed bound myself!). Finding something that is light and comfortable for your lap is important. The one that I have is this one http://amzn.to/2bV3aST I find it very comfortable and the light worked for a while – but not long. In saying that, the desk part is still functional. However (!) when this one finally bites the bullet (and so far, it is very sturdy after a year), this is the one that is on my WishList!:) http://amzn.to/2bV4kxE I hope that you have a good, pain free day. A.x

  9. I was just wondering if anyone has tried the Snoozle? I believe it helps if you have back problems and want to turn in bed….

    1. Author

      Hi there, I haven’t, but I recall seeing it on the web and recall it was quite pricey…I just had a look for the Snoozle on Amazon and couldn’t find it, however I did find this sheet that seems to work the same way – and it is just £8.60! http://amzn.to/2cod5QT

  10. A hospital desk or laptop cart type table has worked great for me. Just do a search on Amazon for hospital table and you will find a whole variety for reasonable prices.

  11. We have this amazing new mattress and I can’t explain it. It is a no pressure mattress. I wake up with no pressure pain only from my hands falling asleep under my pillow. But that is more my fault. If you want to see this amazing mattress go to onpurple.com and watch the video. It’s hilarious but by the end it will amaze you. Now if only I could find a way to fix my pain while I am awake!

  12. My husband purchased a ‘My Pillow’ for both of us about 1 1/2yr. For 25+ years I have struggled with finding a good pillow that would not increase my pain. From the first night using ‘My Pillow’ I have not had any extra pain due to ‘My Pillow’. It is machine washable & dryable. Yes I have W&D mine in a normal W&D and it worked fine (front load washer might would work better). Try it…

    1. Author

      Awesome! Sounds like you found a winner that’s really making a difference for you! I know my U shaped maternity pillow has been life changing, too! Glad to read that you found something that helps. I found it on Amazon, if anybody else is interested – here is the link! http://amzn.to/2gpSFHt

  13. I was diagnosed with fibromyalgia in 2009. When my husband and I moved from Washington state to Kansas we needed to get an extra bed. My sister took me to the Sleep Number Company. I swear I have got some of my best sleep ever!! We got the King split, head and feet both raise up, also has massage. You can set you firmness where you need it! Plus I got the cool jell pads for both sides. I also like the pillows you can buy. I also fell in love with the bamboo sheets. Cool in the summer and warm in the winter!

    1. Author

      That’s awesome that you have found a bed and bedding that you notice a huge difference with, Debbie! Our sleep – and subsequently our mattresses/bedding is so critical for our overall health. Thanks for sharing this with us!!!! (I shall investigate the bamboo sheets – sounds intriguing!). A.x

  14. Hi,
    I am currently trying a Tempur ‘Cloud’ mattress with protector and pillow. I have spent thousands of pounds on beds, mattresses and pillows over the years.
    Tempur offer a 100 night trial, on the mattress, which is going to be helpful.
    I only have a 4 tog duvet on the bed and if it’s I cold use a blanket or throw.
    I never have the heating on in the room and always have an open window unless it’s raining hard. I also sleep in just knickers and cotton vest, to help with unfettered turning and no creases to inflict pain.
    At this moment, one month in- the mattress is being well tolerated. I have used a king size pillow case to ensure the pillow has room to spread. Hopefully this time I may have chosen the secret to successful sleep and pain relief at night. I will also give the bamboo sheets a go.

    1. Author

      Hi Beverley! So awesome that you have found a mattress that has made a difference for you. A good mattress (and bedding!) truly makes all the difference in the world. Just out of curiousity, do you find that you are hot with this mattress? I have admittedly not gone down the memory foam route because i am always roasting (fan on in January, no heat on…window open! lol). Bamboo sheets rock! Thank you so much for your comment, most appreciated. Alyssa x

  15. My oil difuser vapoziser arrived yesterday and I need to say- thumbs up! Like the touch sense buttons and spouting mist.

    1. Author

      Awesome!!!!!Glad you like it! It actually acts as a little humidifier too – perfect for the winter when our homes (and bodies!) get so dried out from the heating! Enjoy! (What oil have you tried with it?) A.x

  16. God bless you Alyssa for taking the time and effort to put this information together so well. To know that you are feeling like most of us but are keeping up with all of these questions, REPEATS and all. I mean scan the questions before you ask the poor lady people! Also, if she suggests a great product and so graciously includes the links but later on the product is no longer available…theres a little thing called GOOGLE! Use it. Everyone is on here so they have the capability. She did the leg work.
    I wish you nothing but the best Alyssa. Sorry for the rant. xoxo

    Much Love Y’all,

    Maggie

    1. Author

      Dear Princess 🙂 (Hey, that’s my nickname, too…Princess & the Pea!:)). Thank you for your lovely comment. Unfortunately, I haven’t had an opportunity to go through to confirm what links are and aren’t working on all the blogs, but I have gone through this blog just now and have not been able to find any that are broken. If you come across any, please do let me know. Ps – nothing wrong with a good rant! (And breathe…lol). A.x

  17. I love the idea of the bamboo sheets. I was just diagnosed with Fibro 8 months ago. So I’m new to all this. I’m pretty sure I’ve had it for over 20 years, but now have progressed to having enough of the symptoms (and bad enough) to get a diagnosis as now it’s interfering with life. I have also gained 30lbs on the cymbalta. So the sleep n lose is something that sounds like a god-send! I am definitely trying that. And also the bamboo sheets as I am always on fire and my hubby is always cold in bed. He hates my fan lol. So hopefully they will provide a comfy balance for us. I also have DDD in my neck and is a problems other sleep so the buckwheat pillow sounds intriguing as well. Thanks so much for the suggestions.
    Another Princess & the Pea,
    Bekah

    1. Author

      Hello fellow Princess! 🙂

      I am so glad that you found this stuff helpful (well, I hope you find them helpful if you try them!). We LOVE the bamboo sheets! And it’s always a disappointment when they aren’t on! lol If interested, do have a look at our sister website – http://www.feelgreatnow.co regarding toxicity issues. Believe me, I hear ya regarding all the issues that you’ve briefly mentioned…and believe it or not, they can all be attributed o ne way or anotherto toxicity and toxic overload. There’s a good quiz on there and a 5 day Detox Your Life Course (free!). Obviously, I am not a doctor and this is NOT a diagnosis! 🙂

      After finding out about toxicity and toxic overload, I am CONVINCED this is one of the main root causes of FM. I know all too well about the fan! (Read, I have it going even in December!). Temperature issues such as this can be attributed to our cortisol being out of whack…which can also be attributed in part to toxicity.

      The Te Divina Detox Tea on the Feel Great Now website has turned my life around…seriously.

      Gentle hugs from a fellow warrior. Please feel free to contact me if you have any questions – I am always more than happy to help!

      Alyssa x

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