United States

National Fibromyalgia & Chronic Pain Association (NFMCPA)

31 Federal Avenue
Logan, UT 84321
United States
Phone: 801-200-3627
Email: info@fmcpaware.org

 

The National Fibromyalgia & Chronic Pain Association (NFMCPA) is a 501(c)3 nonprofit patient support and advocacy organization. They support people with chronic pain illnesses and their families and friends by contributing to caring, professional, and community relationships. Through continuing education, networking with support groups and advocates, and affiliation with professional organizations, the members of the NFMCPA have a place to be informed, get involved, and recognize achievements.

American Fibromyalgia Syndrome Association, Inc. (AFSA)

7371 E Tanque Verde Rd
Tucson, AZ 85715
Phone: 520-733-1570
Fax: 520-290-5550
Email: kthorson@afsafund.org

 

The American Fibromyalgia Syndrome Association’s (AFSA) is a 501(c)(3) nonprofit charity. Formed in 1994, the AFSA’s primary mission is “to fund superior quality, scientific studies on fibromyalgia.” According to their website, over 90% of contributions to AFSA go directly to research.

SOLVE ME/CFS INITIATIVE

SolveCFS@SolveCFS.org
Solve ME/CFS Initiative
P.O. Box 36007
Los Angeles, CA 90036-0007
Phone: 704-364-0016

 

The Solve ME/CFS Initiative (SMCI) has been the leading organization focused on myalgic encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) since being founded in 1987. SMCI envisions a world free of ME/CFS and works steadfastly to make this disease understood, diagnosable and treatable. SMCI seeks to actively engage the entire ME/CFS community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding towards a cure.

National Fibromyalgia Partnership, Inc. (NFP)

140 Zinn Way
Linden, VA 22642-5609
Phone: 866-725-4404

 

The National Fibromyalgia Partnership (NFP) is a 501(c)(3) nonprofit, educational organization. Founded in 1992, its membership includes patients and their families as well as medical professionals (both research and clinical) from across North America and around the world. With assistance from medical experts and organizations like the National Institutes of Health, the NFP offers quality educational materials and speaker presentations on fibromyalgia and related conditions to its membership and the general public.

Fibromyalgia Coalition International (FCI)

5201 Johnson Dr., Ste. 210
Mission, KS 66305-2920
Phone: 913-384-4673
Fax: 913-384-8998
Email: info@fibrocoalition.org

 

Fibromyalgia Coalition International (FCI), a 501(c)(3) nonprofit organization. Founded in 2000, their goal is to develop and execute programs dedicated to addressing the root causes of Fibromyalgia and Chronic Fatigue Syndrome through support groups, awareness outreach, annual conferences, continuing education for healthcare professionals and research efforts.

PANDORA Org

PANDORA Org, Inc.
3209 Charlesgate Ave. S.W.
Wyoming, MI 49509
Phone: 231-360-6830

 

PANDORA Org (Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy) is a grassroots advocacy organization that promotes awareness of Fibromyalgia, ME/CFS, Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) and chronic Lyme disease. PANDORA cooperates with other patient organizations to advocate for physician education, increased government-funded research and government policies that make advancement in improving patients’ quality of life.

AFFTER

P.O. Box 768
Libertyville, IL 60048-0768
Phone: 847-362-7807
Fax: 847-680-3922
Email: info@affter.org

 

AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education and Research) is a 501(c)(3) nonprofit organization. Founded in 1999, their mission is to participate in activities that increase awareness and understanding of fibromyalgia in the public, medical community and patient population; and to organize charitable activities to specifically fund research and education that could lead to finding a cure or more effective treatments for fibromyalgia.

Rheumatoid Arthritis Support Network

121 S. Orange Ave
Orlando, FL 32801
info@rheumatoidarthritis.org
1-877-284-0235

 

Rheumatoid Arthritis Support Network is a team of healthcare writers and professionals who are committed to helping people with rheumatoid arthritis live full, happy lives despite their diagnosis.

International Support Fibromyalgia Network

FibroMapp™ has partnered with the International Support Fibromyalgia Network (ISFN). If you download FibroMapp™ through an ISFN dedicated page, then you will help support them with a donation!

‘We’ve created a patient centered nonprofit dedicated to educating, informing and inspiring the Fibromyalgia community. Our organization fosters a greater connection with the entire community, improving the quality of life, and building on the capacity to create and take action together in order to save lives. All our local leaders come from diverse backgrounds, ages, and experiences. Support Fibro is an inclusive network of women, men, parents, teens, young adults, Veterans, caregivers, families, advocates, providers, and researchers.’

We are #SupportFibro!

 

Contact ISFN by clicking here.

Visit the ISFN website by clicking here.

https://supportfibromyalgia.org/

United States - Research

National Fibromyalgia Research Association (NFRA)

P O Box 500
Salem, OR 97308
Phone: 503-315-7257
Fax: 503-315-7205
Email: nfra@firstpac.com

 

The National Fibromyalgia Research Association (NFRA) is a fibromyalgia activist organization. Founded in 1992, they are “dedicated to education, treatment and finding a cure for fibromyalgia.” Much of their research focuses on Chiari malformation and cervical spinal cord stenosis.

International

International Myopain Society (IMS)

23607 Highway 99, Suite 2-C
Edmonds, WA 98026
Phone: 426-778-6162
Fax: 425-717-9588
Email: info@myopain.org

 

The International MYOPAIN Society (IMS) is a nonprofit, international, interdisciplinary medical organization for research scientists, physicians, other health care professionals, individuals in training toward a health-related career, institutions, foundations, and commercial companies interested in exchanging ideas, conducting research, or learning more about soft tissue pain syndromes like myofascial pain syndrome and fibromyalgia syndrome.

European Network of Fibromyalgia Associations (ENFA)

European Network of Fibromyalgia Associations

Mission 

Promote Fibromyalgia awareness to politicians, physicians, scientists and the general public on a European level

Goal 

As Fibromyalgia is adopted by the European politicians by way of accepting the written declaration 69/2008. It is for ENFA to get the written declaration into action with a primary goal to get Fibromyalgia as a key topic in the European Health Programme.

Ways to reach that goal 

In order to make that happen ENFA is working in a three pronged manner.

  • ENFA has to strengthen the association by way of increasing membership and to improve their internal organization.
  • ENFA has to work together with sister associations in order to get a bigger voice in Europe.
  • ENFA has to work together with other European umbrella associations to get more involved in the policy making process.

Contact:  https://www.enfa-europe.eu/ 

Canada

FM-CFS Canada

310-1500 Bank Street
Ottawa, Ontario K1H 1B8
Phone: 877-437-4673
Email: office@fm-cfs.ca

 

FM-CFS Canada is a registered charity that focuses on educating the public, supporting patients and conducting research related to fibromyalgia and chronic fatigue syndrome.

Australia

ME/CFS/FM Support Association Qld Inc.

St. Vincents Hospital
27 Scott Street
Toowoomba Qld 4350,
Australia
Phone: (07) 4632 8173 or (07) 4659 5239
Fax: (07) 4632 8173
Email: mefmtba@bigpond.com

Europe

European Network of Fibromyalgia Associations (ENFA)

Email: contact@enfa-europe.eu

 

The mission of ENFA is to promote fibromyalgia awareness to politicians, physicians, scientists and the general public on a European level.

Information and links to European Fibromyalgia Organizations can be found on the ENFA website for the following countries:

Belgium Focus asbl, Belgium VLFP vzw, Germany, The Netherlands, Spain, Greece / Crete, Norway, Sweden, Cyprus, Israel, Portugal, Sweden SRA, Denmark, Italy, Slovenia, United Kingdom

France

Association Française du Syndrome de Fatigue Chronique et de Fibromyalgie

Association Française du Syndrome de Fatigue Chronique et de Fibromyalgie
Maison des Associations
72 rue Royale – 59000
LillePhone : 06 45 21 33 88
Email: contact@asso-sfc.org

Spain

Fundación para la Fibromialgia y el Síndrome de Fatiga Crónica

Fundación para la Fibromialgia y el Síndrome de Fatiga Crónica
Passeig Manuel Girona
3 33- BARCELONA (Spain)
Tel: +34-93- 280 46 26/605 85 25 91
Email: info@fundacionfatiga.org

AFIBROM

AFIBROM
C / Clara del Rey, 4, 1 ° A – Esc CW28002
Madrid
Spain
Tel: +34 913567145

United Kingdom

Fibromyalgia Association UK (FMA UK)

Studio 3007
MileEnd Mill 12 Seedhill Road
Paisley PA1 1JS United Kingdom
Phone: 0844 826 9022 (Not for Support Calls)
National Helpline: 0844 887 2444
Fax: 0844 826 9033

 

The Fibromyalgia Association UK is a registered charity. It was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.

ME Association UK

Contact Page

The ME Association (also registered as the ME Society) provides information, support and practical advice for people, families and carers affected byM.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS). We also fund and support research, and offer education and training.

We are the oldest established ME/CFS charity funding only biomedical research into the illness.

Brian Barr Solicitors

Leading Fibromyalgia, Critical Illness & CRPS Lawyers. Brian Barr Solicitors specialise in assisting claimants throughout England and Wales with personal injury, Medical & Professional negligence, Insurance and other claims.

www.brianbarr.co.uk

Free phone: 0808 123 0003

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