Please find the following resources for Fibromyalgia, CFS/ME – from support to research and fundraising.
- National Fibromyalgia & Chronic Pain Association (NFMCPA)
31 Federal Avenue
Logan, UT 84321
The National Fibromyalgia & Chronic Pain Association (NFMCPA) is a 501(c)3 nonprofit patient support and advocacy organization. They support people with chronic pain illnesses and their families and friends by contributing to caring, professional, and community relationships. Through continuing education, networking with support groups and advocates, and affiliation with professional organizations, the members of the NFMCPA have a place to be informed, get involved, and recognize achievements.
- American Fibromyalgia Syndrome Association, Inc. (AFSA)
7371 E Tanque Verde Rd
Tucson, AZ 85715
The American Fibromyalgia Syndrome Association’s (AFSA) is a 501(c)(3) nonprofit charity. Formed in 1994, the AFSA’s primary mission is “to fund superior quality, scientific studies on fibromyalgia.” According to their website, over 90% of contributions to AFSA go directly to research.
- SOLVE ME/CFS INITIATIVE
Solve ME/CFS Initiative
P.O. Box 36007
Los Angeles, CA 90036-0007
The Solve ME/CFS Initiative (SMCI) has been the leading organization focused on myalgic encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) since being founded in 1987. SMCI envisions a world free of ME/CFS and works steadfastly to make this disease understood, diagnosable and treatable. SMCI seeks to actively engage the entire ME/CFS community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding towards a cure.
- National Fibromyalgia Partnership, Inc. (NFP)
140 Zinn Way
Linden, VA 22642-5609
The National Fibromyalgia Partnership (NFP) is a 501(c)(3) nonprofit, educational organization. Founded in 1992, its membership includes patients and their families as well as medical professionals (both research and clinical) from across North America and around the world. With assistance from medical experts and organizations like the National Institutes of Health, the NFP offers quality educational materials and speaker presentations on fibromyalgia and related conditions to its membership and the general public.
- Fibromyalgia Coalition International (FCI)
5201 Johnson Dr., Ste. 210
Mission, KS 66305-2920
Fibromyalgia Coalition International (FCI), a 501(c)(3) nonprofit organization. Founded in 2000, their goal is to develop and execute programs dedicated to addressing the root causes of Fibromyalgia and Chronic Fatigue Syndrome through support groups, awareness outreach, annual conferences, continuing education for healthcare professionals and research efforts.
- PANDORA Org (Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy)
PANDORA Org, Inc.
3209 Charlesgate Ave. S.W.
Wyoming, MI 49509
PANDORA Org is a grassroots advocacy organization that promotes awareness of Fibromyalgia, ME/CFS, Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) and chronic Lyme disease. PANDORA cooperates with other patient organizations to advocate for physician education, increased government-funded research and government policies that make advancement in improving patients’ quality of life.
- AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education and Research)
P.O. Box 768
Libertyville, IL 60048-0768
AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education and Research) is a 501(c)(3) nonprofit organization. Founded in 1999, their mission is to participate in activities that increase awareness and understanding of fibromyalgia in the public, medical community and patient population; and to organize charitable activities to specifically fund research and education that could lead to finding a cure or more effective treatments for fibromyalgia.
Legal Resources for Special Needs
Keeping Disabled Persons Safe While Remodeling
Creating a Home Where Your Disabled Child can Thrive
Teacher Resources for Special Needs
Disaster Preparedness for Special Needs
Disability and Credit Scores
Disability Resources from the Department of Labor
Tips for Disabled Persons to Declutter and Organize their Home
Financial Planning for Special Needs
- International Myopain Society (IMS)
23607 Highway 99, Suite 2-C
Edmonds, WA 98026
- The International MYOPAIN Society (IMS) is a nonprofit, international, interdisciplinary medical organization for research scientists, physicians, other health care professionals, individuals in training toward a health-related career, institutions, foundations, and commercial companies interested in exchanging ideas, conducting research, or learning more about soft tissue pain syndromes like myofascial pain syndrome and fibromyalgia syndrome.
- European Network of Fibromyalgia Associations (ENFA)
The mission of ENFA is to promote fibromyalgia awareness to politicians, physicians, scientists and the general public on a European level.
- Information and links to European Fibromyalgia Organizations can be found on the ENFA website for the following countries:
Belgium Focus asbl, Belgium VLFP vzw, Germany, The Netherlands, Spain, Greece / Crete, Norway, Sweden, Cyprus, Israel, Portugal, Sweden SRA, Denmark, Italy, Slovenia, United Kingdom
Association Française du Syndrome de Fatigue Chronique et de Fibromyalgie
Maison des Associations
72 rue Royale – 59000
LillePhone : 06 45 21 33 88
Fundación para la Fibromialgia y el Síndrome de Fatiga Crónica
Passeig Manuel Girona
3 33- BARCELONA (Spain)
Tel: +34-93- 280 46 26/605 85 25 91
C / Clara del Rey, 4, 1 ° A – Esc CW28002
Tel: +34 913567145
Fibromyalgia Association UK (FMA UK)
MileEnd Mill 12 Seedhill Road
Paisley PA1 1JS United Kingdom
Phone: 0844 826 9022 (Not for Support Calls)
National Helpline: 0844 887 2444
Fax: 0844 826 9033
The Fibromyalgia Association UK is a registered charity. It was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
The ME Association (also registered as the ME Society) provides information, support and practical advice for people, families and carers affected byM.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS). We also fund and support research, and offer education and training.
We are the oldest established ME/CFS charity funding only biomedical research into the illness.
Brian Barr Solicitors
Leading Fibromyalgia, Critical Illness & CRPS Lawyers. Brian Barr Solicitors specialise in assisting claimants throughout England and Wales with personal injury, Medical & Professional negligence, Insurance and other claims.
Free phone: 0808 123 0003
UNITED STATES – RESEARCH
The National Fibromyalgia Research Association (NFRA) is a fibromyalgia activist organization. Founded in 1992, they are “dedicated to education, treatment and finding a cure for fibromyalgia.” Much of their research focuses on Chiari malformation and cervical spinal cord stenosis.