Please find the following resources for Fibromyalgia, CFS/ME – from support to research and fundraising.

United States

  • National Fibromyalgia & Chronic Pain Association (NFMCPA)
    31 Federal Avenue
    Logan, UT 84321
    United States
    Phone: 801-200-3627
    Email: info@fmcpaware.org

    The National Fibromyalgia & Chronic Pain Association (NFMCPA) is a 501(c)3 nonprofit patient support and advocacy organization. They support people with chronic pain illnesses and their families and friends by contributing to caring, professional, and community relationships. Through continuing education, networking with support groups and advocates, and affiliation with professional organizations, the members of the NFMCPA have a place to be informed, get involved, and recognize achievements.

  • American Fibromyalgia Syndrome Association, Inc. (AFSA)
    7371 E Tanque Verde Rd
    Tucson, AZ 85715
    Phone: 520-733-1570
    Fax: 520-290-5550
    Email: kthorson@afsafund.org

    The American Fibromyalgia Syndrome Association’s (AFSA) is a 501(c)(3) nonprofit charity. Formed in 1994, the AFSA’s primary mission is “to fund superior quality, scientific studies on fibromyalgia.” According to their website, over 90% of contributions to AFSA go directly to research.

  • SOLVE ME/CFS INITIATIVE
    SolveCFS@SolveCFS.org
    Solve ME/CFS Initiative
    P.O. Box 36007
    Los Angeles, CA 90036-0007
    Phone: 704-364-0016

    The Solve ME/CFS Initiative (SMCI) has been the leading organization focused on myalgic encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) since being founded in 1987. SMCI envisions a world free of ME/CFS and works steadfastly to make this disease understood, diagnosable and treatable. SMCI seeks to actively engage the entire ME/CFS community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding towards a cure.

  • National Fibromyalgia Partnership, Inc. (NFP)
    140 Zinn Way
    Linden, VA 22642-5609
    Phone: 866-725-4404

    The National Fibromyalgia Partnership (NFP) is a 501(c)(3) nonprofit, educational organization. Founded in 1992, its membership includes patients and their families as well as medical professionals (both research and clinical) from across North America and around the world. With assistance from medical experts and organizations like the National Institutes of Health, the NFP offers quality educational materials and speaker presentations on fibromyalgia and related conditions to its membership and the general public.

  • Fibromyalgia Coalition International (FCI)
    5201 Johnson Dr., Ste. 210
    Mission, KS 66305-2920
    Phone: 913-384-4673
    Fax: 913-384-8998
    Email: info@fibrocoalition.org

    Fibromyalgia Coalition International (FCI), a 501(c)(3) nonprofit organization. Founded in 2000, their goal is to develop and execute programs dedicated to addressing the root causes of Fibromyalgia and Chronic Fatigue Syndrome through support groups, awareness outreach, annual conferences, continuing education for healthcare professionals and research efforts.

  • PANDORA Org (Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy)
    PANDORA Org, Inc.
    3209 Charlesgate Ave. S.W.
    Wyoming, MI 49509
    Phone: 231-360-6830

    PANDORA Org is a grassroots advocacy organization that promotes awareness of Fibromyalgia, ME/CFS, Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) and chronic Lyme disease. PANDORA cooperates with other patient organizations to advocate for physician education, increased government-funded research and government policies that make advancement in improving patients’ quality of life.

  • AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education and Research)
    P.O. Box 768
    Libertyville, IL 60048-0768
    Phone: 847-362-7807
    Fax: 847-680-3922
    Email: info@affter.org

    AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education and Research) is a 501(c)(3) nonprofit organization. Founded in 1999, their mission is to participate in activities that increase awareness and understanding of fibromyalgia in the public, medical community and patient population; and to organize charitable activities to specifically fund research and education that could lead to finding a cure or more effective treatments for fibromyalgia.

International

  • International Myopain Society (IMS)
    23607 Highway 99, Suite 2-C
    Edmonds, WA 98026
    Phone: 426-778-6162
    Fax: 425-717-9588
    Email: info@myopain.org
  • The International MYOPAIN Society (IMS) is a nonprofit, international, interdisciplinary medical organization for research scientists, physicians, other health care professionals, individuals in training toward a health-related career, institutions, foundations, and commercial companies interested in exchanging ideas, conducting research, or learning more about soft tissue pain syndromes like myofascial pain syndrome and fibromyalgia syndrome.

Canada

  • FM-CFS Canada
    310-1500 Bank Street
    Ottawa, Ontario K1H 1B8
    Phone: 877-437-4673
    Email: office@fm-cfs.ca
  • FM-CFS Canada is a registered charity that focuses on educating the public, supporting patients and conducting research related to fibromyalgia and chronic fatigue syndrome.

Australia

Europe

  • European Network of Fibromyalgia Associations (ENFA)
    Email: contact@enfa-europe.eu

    The mission of ENFA is to promote fibromyalgia awareness to politicians, physicians, scientists and the general public on a European level.

     

  • Information and links to European Fibromyalgia Organizations can be found on the ENFA website for the following countries:

    Belgium Focus asbl, Belgium VLFP vzw, Germany, The Netherlands, Spain, Greece / Crete, Norway, Sweden, Cyprus, Israel, Portugal, Sweden SRA, Denmark, Italy, Slovenia, United Kingdom

  • UNITED KINGDOM

    Fibromyalgia Association UK (FMA UK)
    Studio 3007
    MileEnd Mill 12 Seedhill Road
    Paisley PA1 1JS United Kingdom
    Phone: 0844 826 9022 (Not for Support Calls)
    National Helpline: 0844 887 2444
    Fax: 0844 826 9033

    The Fibromyalgia Association UK is a registered charity. It was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.

    ME Association UK

    Contact Page

    The ME Association (also registered as the ME Society) provides information, support and practical advice for people, families and carers affected byM.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS). We also fund and support research, and offer education and training.

    We are the oldest established ME/CFS charity funding only biomedical research into the illness.

    Brian Barr Solicitors

    Leading Fibromyalgia, Critical Illness & CRPS Lawyers. Brian Barr Solicitors specialise in assisting claimants throughout England and Wales with personal injury, Medical & Professional negligence, Insurance and other claims.

    www.brianbarr.co.uk

    Free phone: 0808 123 0003

UNITED STATES – RESEARCH

National Fibromyalgia Research Association (NFRA)
P O Box 500
Salem, OR 97308
Phone: 503-315-7257
Fax: 503-315-7205
Email: nfra@firstpac.com

The National Fibromyalgia Research Association (NFRA) is a fibromyalgia activist organization. Founded in 1992, they are “dedicated to education, treatment and finding a cure for fibromyalgia.” Much of their research focuses on Chiari malformation and cervical spinal cord stenosis.